Bulletin Board

 MMM

Meeting information

 Ovarian cancer survivors meet the last Tuesday of each month at 5:30 pm at Clearview Cancer Institute on the 2nd floor (Community Room).

Map It!

 

 We will start off 2016 with an awesome support meeting. Our speaker with be a nutritionist. This is always one of our favorite and most informative topics. You may bring family members to hear the program if you like. Make plans now to be there on Tuesday, January 26, 2016, 5:30 p.m., 2nd Floor Community Room at CCI.

 

 

2015

Thank you Tennessee Valley Gynecologic Oncology for sponsoring our tree on Tinsel Trail this year. You’re the tops!

 

lilies tree dec 2015

 

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This year’s A State of Teal awareness campaign in September is off to a great start. We’ve gotten official proclamations from the mayors of Arab, Scottsboro, Madison, Huntsville, Russellville, Athens and Florence.mayor joslin and lisa broussard 08 05 15lilies in scottsboromarjorie madison council 2015lov huntsville city council 08 27 15

 

 

Thank you to our lighting participants this year: Huntsville Hospital Women & Children’s Center; Northeast Alabama Community College; Huntsville Botanical Gardens; Calhoun Community College; First Commercial Bank; and the City of Scottsboro.

 

huntsvillehospital 09 01 15 lights 0707090041

 northeast alabama community college 09 01 15

 

 

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An easy way to help provide funding for ovarian cancer research in Alabama is to purchase an Ovarian Cancer Awareness car tag. The proceeds from sales go to the Norma Livingston Foundation in Birmingham, which funds research at UAB. These dollars will be staying in our state!

ovca car tag art

 

 

2014

 

 

Lilies of the Valley with Tinsel Trail tree

 

MERRY CHRISTMAS AND HAPPY NEW YEAR TO EVERYONE!

A special thank you goes to Teledyne Brown Engineering for sponsoring the Lilies for a tree on the 2014 Tinsel Trail!

  

 

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SEPTEMBER 2014, OVARIAN CANCER AWARENESS MONTH, WAS AWESOME. THE LILIES WORKED WITH SUPPORT GROUPS AROUND THE STATE IN A JOINT EFFORT CALLED “A STATE OF TEAL” (www.astateofteal.org). BELOW ARE PHOTOS OF PLACES LIGHTED IN HUNTSVILLE FOR OVARIAN CANCER AWARENESS.

calhoun comm college sept 2014

HHFountain teal 09 14

 

bot gardens

 

teal al.com

 

ALSO, IN SEPTEMBER, THE LILIES HOSTED A SHOWING OF THE MOVIE, NO EVIDENCE OF DISEASE. IT WAS A SELLOUT! THANK YOU TO ALL WHO PURCHASED TICKETS AND ATTENDED THE MOVIE SHOWING.

susan, me, judy at NED 09 18 14

 

 Spring Symposium 2014 was held at Calhoun Community college on Saturday,  May 3.  It was a great success! Thank you to all the Lilies who volunteered their time that day to make things run smoothly.

 lilies at symposium may 2014

  

We had an excellent presentation at our October 2013 Lilies meeting about clinical trials, which included a list of good Web sites to visit for information on ovarian cancer. It is very important that you make sure you are seeking information from reliable sources since the Web can be a breeding ground for misinformation. Here are some sites we recommend, but always consult your physician before relying on any online health information. It is best to avoid getting information from social media, blogs or foreign websites. And beware of email solicitations that offer you free information or subscriptions.

General:

American Cancer Society: www.cancer.org

National Cancer Institute: www.nci.nih.gov

Society of Gynecologic Oncologists: http://sgo.org

Mayo Clinic: www.mayoclinic.com

MedicineNet: www.medicinenet.com

WebMD: http://webmd.com

Clinical Trials:

Federal site that list trials: http://www.clinicaltrials.org

Check the Website of the sponsoring facility.

Patient information and advocacy organizations:

Lilies of the Valley (Huntsville and the Tennessee Valley): www.liliesofthevalley.org

Ovarian Cancer National Alliance: www.ovariancancer.org   (You can also sign up here for the Inspire online support group, which is a good resource.)

Women’s Cancer Network: http://wcn.org

Ovarian Cancer Research Fund: www.ocrf.org

FORCE: www.facingourrisk.org (BRCA+ information)

National Ovarian Cancer Coalition:  www.ovarian.org

Association of Cancer Online Resources:  www.acor.org

 

 

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If you have any topics you would like us to discuss at future meetings, please send them to regina35763@gmail.com. Our meetings are for US, and we want to talk about  your concerns! If you have an idea for an activity you would like for us to consider or an issue you want to bring to the Board of Directors, complete the attached ACTIVITY SUBMISSION FORM 10 2013 and email it to liliesofthevalleyemail@gmail.com.

 

2013 News and Events:

 

 Lily and LOV Board Member Tammi Scruggs, with husband Wayne, was featured in a story on WHNT, Channel 19. Great job Tammi. We love your teal deck chairs!  http://whnt.com/2013/10/24/good-fight-2/

 

 

Fun, fun, fun was had at the Tie the Ribbons luncheon on October 24.HudsonAlpha 2013 luncheon

 

Lily member Stephanie Booker, was featured in a story on al.com in September. Check it out here!

 

WAFF, Channel 48, joined us in wearing teal on Friday, September 6,  National Wear Teal Day for awareness. A big thank you to Liz Hurley for encouraging her co-workers to go teal!

 

We will be having a remembrance ceremony at the Lilies garden on Meridian Street. The statue in the garden is being engraved with the names of the ladies we’ve lost in the past year and new bricks will be installed. We usually do this in September, but because of some unforeseen delays, we will probably wait to do this until early 2014, probably in the spring. Details to come.

 

 

We had a great get-together on August 22, 2013. About 25 Lilies and family members attended the Huntsville City Council meeting. Mayor Tommy Battle gave us a proclamation declaring September as Ovarian Cancer Awareness Month. Afterward we had dinner at Pan e Vino.

City Council proclamation 8 22 13

 

Upcoming Health Fairs – Volunteers needed! : Saturday, December 7, Madison YMCA, 9 a.m. to 12 p.m.

 

In June, 2013, Lilies member Regina Parker attended the annual meeting of ASCO (American Society of Clinical Oncologists) in Chicago. She and other ovarian cancer advocates contributed to a report compiled by OCNA that details the cancer news most applicable to ovarian cancer patients, survivors and caregivers. To read the report go to:

http://www.ovariancancer.org/report-from-asco-2013-new-research-on-ovarian-cancer/

 

Relay for Life was held at John Hunt Park on Friday, May 17, 2013. Lilies of the Valley had a team, but the event was pretty much a “wash out” because of the pouring down rain. Thank you  to the team, even if you didn’t walk: Marjorie Bermudez, Judy Berkowitz, Susan Herring, Regina Parker, and our top money-raiser, new member Tammi Scruggs. We’ll just have to hope for better weather next go around!

 

At our February meeting, our facilitators shared an article on “Chemo Brain.” It had an image in of a brain scanned before and after chemo. Pretty interesting:

http://www.npr.org/blogs/health/2012/12/28/168141465/another-side-effect-of-chemotherapy-chemo-brain

 

 2012:

 

One of our Lilies, Anne Boles, was honored at the Russell Hill Foundation White Linen & Wine event on February 16. To see pictures from this event, visit the Russell Hill web site, or like its page on Facebook.

 

 

On September 4, 2012, several Lilies traveled to Montgomery where Mrs. Bentley declared the day Ovarian/Gynecological Cancer Day. After a lovely ceremony, the Capitol was lit in teal for the evening.

 

 

WAFF recently aired a segment on ovarian cancer that featured lily Kim  Patterson and Dr. David Engle. http://www.waff.com/story/16768723/your-health-ovarian-cancer

 

   Group Activities

l NOT meet in December as usual at support group on our last Tuesday.  We will resume these last-Tuesday meetings again in JAN. 
In lieu of a support group meeting in December we will have a December Social and we invite all of you to come!
11:30 am Thursday, December 15, 2011
Terranova restaurant on University Drive
Click here for directions
Please RSVP!!  to Susan — SLL260a@aol.com or 256-883-4951– by Dec 11 (next Sunday).  Or you can reply to this email and I will forward it to her.We will NOT meet in December as usual at support group on our last Tuesday.  We will resume these last-Tuesday meetings again in JAN. 
In lieu of a support group meeting in December we will have a December Social and we invite all of you to come!
11:30 am Thursday, December 15, 2011
Terranova restaurant on University Drive
Click here for directions
Please RSVP!!  to Susan — SLL260a@aol.com or 256-883-4951– by Dec 11 (next Sunday).  Or you can reply to this email and I will forwa

Looking for ways to volunteer with us?  Here are regular ways you can help! We need you!

 

Dr. Oz dedicated an entire show to Ovarian Cancer on September 12, 2011 featuring well known gyn-oncologists,  ovarian cancer survivors, and important facts about the disease. You can download this guide to read and use with friends when talking about ovarian cancer this month. http://www.doctoroz.com/videos/ovarian-cancer-one-sheet.

  

See news coverage of our WAAY31 TV highlighting Lilies of the Valley during the Community Health Initiative Press Conference here.

 

Ovations for the Cure has a “Princess Bead & Bracelet” program that provides beautiful keepsake bracelets to ovarian cancer patients free of charge. Click  here for more details.

 

The Legacy of Hope is taking applications, due the 15th of each month. 

 

WHO DAT??  View Dat! By clicking HERE.

 

Educational Activities

 

The Ovarian Cancer National Alliance presents a webinar series on a variety of educational and informative topics.  Click here to register

 

Click here for information on GCF survivor’s courses 

 

Hope Line for Ovarian Cancer, Sponsored by L’Oreal Paris, Ovarian Cancer Research Fund, & Cancer Care. Open M-F from 9-5.  Service is FREE.  Counseling service by CancerCare’s oncology social workers.  Call “Hope Line” for ovarian cancer: 1-877-OV-HOPE1.

Spirit of Survivorship!  Read survivor stories and enter your own   here .

  

Watch the stories of our own Lilies survivors:  Anne’s Story

See photos in our photo gallery!